John Is My Hero

Sometimes when things seem too crazy for me to handle, John comes home and helps me put it all into perspective.

One night, he read to me from John 9.
As he went along, he saw a man blind from birth. His disciples asked him, "Rabbi, who sinned, this man or his parents, that he was born blind?"
"Neither this man nor his parents sinned," said Jesus, "but this happened so that the work of God might be displayed in his life."

Last night he told me about an interview with Steven Curtis Chapman he heard on the radio. Maria Sue, his daughter who was killed in a tragic accident a few months ago, drew a picture of a flower and the word "See" the morning of the accident. Only one petal of the flower was colored in, and Steven Curtis Chapman said, "We have six children - only one of them is whole now, we believe, in the arms of Jesus...She was saying, 'See? I'm good. I'm OK.'" John went on to remind me that one day James will be whole again. Oh, how I long for that day. I long for heaven.

Monthly Update Time!

On August 1, James had his nine month appointment. He weighed 15 lb 3 oz, and measured 26 in long. He grew about two inches since his last appointment so the GH is really working!

On the feeding front, we are trying all sorts of new foods. Check out James eating mango! We try to push as much protein as we can, though, at the suggestion of moms of other kids with PWS. He still fights drinking milk, but I've decided I'm okay with feeding him when he's asleep. As long as he's getting enough calories from solids and drinks some water with each meal and snack, I figure he should be okay.

James has had so much fun in therapy lately. One day, he got to play with blue jello. Another day, he finger painted with vanilla yogurt. Last Wednesday, the therapists stripped him down to his diaper and let him splash his arms in a little tub of water. He loved it! Needless to say, we always have to give him a bath after therapy! This coming Wednesday he will be starting outpatient PT in addition to the OT and Speech sessions to work on gross motor skills like sitting, crawling, and standing.